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| Dog storage: the only other thing they're good for |
Within 2 months of moving in, no fewer than 3 intelligent adults had fallen on my pretty pretty stairs. Because it turns out a narrow, pie-shaped step is hard to walk on. Especially with stuff like dogs and kids and laundry baskets in the mix. (It's bad enough we reported issue to the builder and they removed the option from all future homes.)
Anyhoo, that's the long-winded way of splainin' that we hadn't lived here too long before my bouncy Shepherd facilitated a particularly dramatic incident on those poorly designed stairs. My ankle got a nasty sprain and I smashed my knees badly on the hardwood floor when I landed. There was lots of swelling and bruising and a general inability to walk. Serious enough my GP sent me to the ER for x-rays.
There I was in the waiting room trying to convince my sweet, mellow husband not to disown the dog, and a nurse pulled me into a side room and started asking questions. Starting with "do you feel safe at home?"
It was so far from my reality it took me a second to understand what she was asking. Once I did - and convinced her the dog really, truly had tripped me down the steps - I couldn't get over the irony. Because there was a time when I would have given anything for certain people in my life to have been asked that question. In deference to privacy I can't say more. It's just that the irony was momentarily overwhelming.
Cut to maybe 6 years later. Bear had a routine well baby visit. He'd been diagnosed already, so he was definitely 2.
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| Bruised shins of a 3 yr old sensory seeker |
And then she gave me that look. The same look the ER nurse gave my poor innocent husband the day I fell down the stairs. The look that says "He's hurt and I think it's your fault."
I laughed it off and said "yep, he's my little seeker" and made small talk about boys being boys. But I was shaken to my core.
First of all, she did not understand the reference to him being sensory seeker. Second of all... omg this woman thought I hurt my baby.
I know there are horror stories out there, but it certainly made me wonder how common it is for SPD parents to either be suspected or even openly accused of physical abuse?
It doesn't take a genius to notice that a lot of the things a sensory seeker does to get input can result in injury. I know I worry every single time we do the Row Row Row Your Boat song because of the way he whips up and slams down.
I'm so worried he'll injure his neck or head or brain I've restricted the activity to the squishy couch surrounded by pillows. What medical practioner wouldn't, for instance, suspect a child who presented with an injury like that had been shaken?
What bothered me almost as much as the unspoken abuse accusation was that the nurse failed to recognize that having SPD and being a sensory seeker was a valid explanation for his bruises. It certainly made me more determined to be an effective advocate and educator. Not only for my child, but for all children impacted by this disorder.
It feels like an incremental burden, this new knowledge that people who simply don't understand SPD will assume the worst about us as parents. Because it's not like being judged by a NT mom at the park who thinks you shouldn't let your kid climb the slides. Being judged by a mandated reporter opens a life-altering can of worms that could potentially devastate an innocent family.
I'm grateful to have the support and understanding of my son's doctors, and I don't think this misunderstanding will happen again for my family. But as a parent advocate I still feel the weight of responsibility for helping educate the public about SPD. Because ideally, we want to keep this misunderstanding from happening to any of our families.
If you are in a situation where you really do wish someone would ask if you feel safe, please call the National Domestic Violence Hotline at 1−800−799−SAFE.



10 comments:
Michelle, my guys ALWAYS have the worst bruises on their legs - worse than I've ever seen on any other kids. It's a combination of the seeking and the clumsiness that comes with coordination problems. When I'm taking them in for totally unrelated conditions like flu or fever, I have often worried about what health care workers might be thinking - I don't know what I would have said if one of them would have made a comment like you experienced... but I sure know how awful it would feel!
Looks like a photo of my laddie's legs, except your little boy has lots more meat on his bones - oh I would love a little fat on my boy's bones..
But that is off topic - I wanted to comment about the insinuating look that you were given and to be honest, I dont think the nurse has any idea of SPD let alone sensory seeking behaviour. My son has been diagnosed for 9 months now and I am still trying to educate those closest to me while I learn all I can as well. I wonder sometimes if it would help to journal in incidents - like we need any more stuff to journal. Just a thought
All the best
joyce
I have been given that "look" as well, by my kid's doctor. On one hand, you understand the concern, but on the other it gives you that unexplainable nauseaus feeling in the pit of your stomach that someone could even think that you would harm your baby. My son is a mix seeker/avoider depending, and also has self injurious behaviors. I had to explain to the doc that yes, my child actually does hit himself in the face. :(
You mean other people's little boys shins don't look like this???
I have three boys aged under 7 and their shins always looked like this.Admitidly two of them are on the Autistic spectrum but I honestly thought it was just a boy thing.
Thanks for an interesting read.
Michelle :-)
This is why at least once in a given year, I try to catch a video of Ash jumping shins-first into the empty bathtub before I can fill it, along with other indicative habits that validate my claims that he is getting banged-up by his brain, not his parents. Before we meet with anyone new, I load these back onto my mini digital video device, so I can play them back if I get that look, and open someone's mind to listening to the explanation, not just hearing an excuse.
All three of my kids have seriously bruised shins. The funny thing is, at one well-check up for my oldest son (the one with SPD and major seeker tendencies) I was so worried the pediatrician would be concerned. But she said that shin bruises are totally normal for young kids, and that when a kid is abused, you tend to see bruises in other places, not the shins. I was so relieved.
It's a miracle my sensory seeker hasn't had worse injuries considering his fearless nature. I wish more professionals understood SPD--maybe they wouldn't be so suspicious of us parents.
I'm pretty certain my son's knees and shins are permanently purple. I'm always questioning what happened to him whenever I give him a bath. He always looks like someone took a baseball bat to him! I'm actually waiting for the day when a doctor or teacher asks me what's going on...
I commented on my son's bruised shins to his pediatrician at one of his well child check-ups. The doctor replied that he expects to see them. He gets worried when a child of that age has no bruises at all. Because my son was born with a Mongolian birthmark (looks just like a black and blue, just below his waist on his backside), I made his doctor document it- as my son started a developmental preschool at age 2- and they would be changing his diaper. Somewhere I read about people being accused of abuse when it was the birthmark.
Oh yes, I too have had that look. Even MORE suspiciously, I'd guess, because my (major)sensory seeker is a girl. Not only is she a sensory seeker, she has really, really poor spatial awareness and vestibular issues and has been walking into doorways and tripping on stairs or curbs for literally as long as she could walk. Well, it has gotten a bit better in the past couple of years (she's almost 8 now) thanks to diligent OT, but still, even today her legs and arms and occasionally forehead/face are banged up, bruised up, scraped up.
While I appreciate the concern and "taking note" that the medical professionals do, in our case, like in yours, I'd appreciate more "inquiring first and suspicion second" ...
It's somehow really reassuring to know that I'm not alone in the looks that come from having a boy with constantly banged up knees, arms - at one particularly uncomfortable checkup, my little guy had leapt off of his bed and managed to bruise his little back too. I hate the feeling of that look, especially because if the nurse/doctor/whoever is not aware of SPD, then there is really no amount of explaining that can make them understand how hard it is to keep those little limbs bruise-free!
Great post, Michelle, and thanks for helping me (and lots of others, judging from the comments) feel less alone!
~Mary
www.patchworkacademy.com
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